Educational Resources

There's a lot of misinformation about Rheumatoid Arthritis and autoimmune diseases on the internet and it's hard to figure out what's factual. I hope this list helps you sort through the weeds to find information that truly educates you so you can make better decisions as you advocate for yourself.

The ACR is a large association of doctors, scientists, and research professionals dedicated to advancing rheumatology. Their website offers great information about medications, ways to get involved with advocacy, and more.

Medical

Advocacy

Arthritis Foundation

arthritis.org

The Arthritis Foundation is primarily an advocacy group dedicated to finding a cure and being a voice for patients. You can find information about support groups, medications, and more.

Practical Tips

Occupational Therapy

Arthritis Life

arthritis.theenthusiasticlife.com

Cheryl is an occupational therapist with Rheumatoid Arthritis and offers a wealth of information on how to live daily life with RA. She also hosts Rheum to Thrive, a support group for people living with RA.

Advocacy

Family Planning

Medical

Creaky Joints

creakyjoints.org

Creaky Joints is a great resource for learning about medication, autoimmune facts v. myths, and advocacy.

Advocacy

Hued

huedco.com

HUED is a digital health equity company creating equitable and inclusive healthcare experiences for Black, Latinx, and Indigenous communities. They have resources for doctors, patients, and even a directory you can use to find culturally competent doctors near you.

Medical

National Health Service of the UK

nhs.uk

The NHS is the healthcare system of the United Kingdom. They are always putting out great information about Rheumatoid Arthritis and I've found over the years that they seem to be more knowledgable about the disease than many American sources of info about RA. The overview for Rheumatoid Arthritis that I've linked here does a great job of hitting the highlights about living with RA, treatment, diagnosis, and causes.

Medical

National Institute of Arthritis and Musculoskeletal and Skin Diseases

niams.nih.gov

The NIAMS is part of the National Institutes of Health, a US government organization. Another great resource for finding basic information about RA, they also include "news" about Rheumatoid Arthritis so you can learn about the latest research and findings within the field.

Family Planning

Repro Rheum

reprorheum.duke.edu

This is an amazing resource for anyone with a rheumatic disease considering pregnancy. The program is supported by an Independent Medical Education grant from UCB and is directed by researchers at Duke University School of Medicine.

Medical

Rheum for More

ra.com

Rheum for More was created by AbbVie, the pharmaceutical company that created Humira, a popular RA drug. I know a lot of folks are weary about going to a pharmaceutical company for information, but this website does a great job at presenting the sobering reality of RA and what happens when it goes untreated. They focus a lot on your relationship with a rheumatologist, what the goals of treatment should and should not be, and how to tell if your treatment is working or not.

Contact

Have questions about Flare Family? Need advice about living with Rheumatoid Arthritis? I'm here to connect with you and answer your questions!

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ellenwitharthritis@gmail.com

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Educational Resources

American College of Rheumatology

Arthritis Foundation

Arthritis Life

Creaky Joints

Hued

National Health Service of the UK

National Institute of Arthritis and Musculoskeletal and Skin Diseases

Repro Rheum

Rheum for More

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